Adrian Thorogood

Twitter : @adthoro

I am a lawyer and legal researcher specialized in the governance of international health research collaborations. I have spent the past three years working with the Global Alliance for Genomics and Health to promote consent and governance standards for the global exchange of bioinformatics data. I am also managing the CONP Ethics and Governance Committee and working to develop policies and processes to enable ethical, open neuroscience.

My research project focuses on how neuroscience and genomic research databases, like the CONP Portal, can maximize data exchange, while navigating legal and ethical barriers. In particular, I explore how neuroscience researchers can use open licenses to remove intellectual property restrictions on re-use and sharing, and how they can adopt standard consent models and privacy protections to navigate complex global data protection laws.