A recent publication describes a new data access policy model, which could help CONP partners share data broadly with scientific and healthcare communities.

S.O.M. Dyke et al. Registered Access: Authorizing Data Access. European Journal of Human Genetics, https://doi.org/10.1038/s41431-018-0219-y.

Lead author, Dr. Stephanie Dyke, is an ethics & policy researcher at McGill’s Montreal Neurological Institute and CONP Ethics & Governance Officer. CONP aims to address the ethical and legal challenges of large-scale sharing of neuroscience resources. It has established an Ethics and Governance Committee and is working on guidance in the areas of consent, privacy, and data governance, to enable access to a wide range of imaging, genomic, and clinical datasets.